What to do in life?

[Rooster71]

Hello all. I am 34 years old (single with no children) and for the last year I have been permanently disabled (on SSDI and long term disability). I have a degenerative neuromuscular disorder that has caused me to lose most of the strength and sensitivity in my arms, legs, hand and feet. I can still walk, write and use a keyboard, however I am very slow at doing all three.

My purpose in posting this is basically to get comments, input and ideas, etc. from people I don't personally know. Things like "what would you do in a similar situation" and what others you have known may have done in similar situations. I especially value input from persons in similar situations. I am basically looking to expand my outlook on life in general, I guess.

I am unable to work, luckily my disability income covers my expenses. I have adequate savings to invest, so investing is definitely something I am interested in (not stocks & bonds).

[vexvelour]

I'm sorry about your situation- I cannot say I'm in the same boat.

Investing in mutual funds has shown a great profit for me. I think it's a great idea if you have a chunk to invest and don't have to touch it for many years. Franklin-Tempelton is the one I chose.

Also, as a side note, switching to an organic diet and perhaps getting a colon/body cleanse will make you feel physically better.

Good luck.

[deacsoft]

Read up on private placement programs if you're able to get in onethey are a huge money maker. If you're not able to get in one read up on 4x trading. Good luck.

[reo]

. . .

[mosquito]

[ QUOTE ]
Hello all. I am 34 years old (single with no children) and for the last year I have been permanently disabled (on SSDI and long term disability). I have a degenerative neuromuscular disorder that has caused me to lose most of the strength and sensitivity in my arms, legs, hand and feet. I can still walk, write and use a keyboard, however I am very slow at doing all three.

My purpose in posting this is basically to get comments, input and ideas, etc. from people I don't personally know. Things like "what would you do in a similar situation" and what others you have known may have done in similar situations. I especially value input from persons in similar situations. I am basically looking to expand my outlook on life in general, I guess.

I am unable to work, luckily my disability income covers my expenses. I have adequate savings to invest, so investing is definitely something I am interested in (not stocks & bonds).

[/ QUOTE ]

Take something you are interested in, and learn as much as you can about it. If it happens that you make some money along the way, great. Otherwise enjoy. Best wishes.

I'm in a similar situation. I'm an unemployed bonus whore + unemployment benefit recipient

I fill my day by listening to music, reading books, cleaning the house, gym + boxing & driving her car around while she is at work 6 days a week.

Man i tell you there are only so many times you can watch Rounders...tough life.

Seriously though just be thankful you're not one of those people who have to get up every day at 6am to sit in an office cubicle 5 days a week. Hell it's bad enough i have to get up to drive her.

[sexdrugsmoney]

</font><blockquote><font class="small">En respuesta a:</font><hr />
Hello all. I am 34 years old (single with no children) and for the last year I have been permanently disabled (on SSDI and long term disability). I have a degenerative neuromuscular disorder that has caused me to lose most of the strength and sensitivity in my arms, legs, hand and feet.

[/ QUOTE ]

Hello rooster, nice to meet you.

I have a couple of questions for you please:

What is your neuromusclar disease called, and when did you know you had it? (from birth or did you feel something was wrong anmd the doc did tests?)

Cheers,
SDM

[raisins]

I would learn how to make my movements as economical and efficient as possible. Are you familiar with movement learning techniques like Alexander and Feldenkrais? It's a pretty interesting area in its own right, you would likely be working to slow down any degeneration and you may have some opportunities to teach or give some guidance to those with similar conditions. Another related area to this is learning how vitamins and other diet supplements effect degenerative nerve conditions.

I can see how you might get sick of this sort of thing as it does not distract you from your disorder, it takes you further into it, but if it interests you I think it could be very rewarding.

regards,

raisins

[Rooster71]

[ QUOTE ]
[ QUOTE ]
Hello all. I am 34 years old (single with no children) and for the last year I have been permanently disabled (on SSDI and long term disability). I have a degenerative neuromuscular disorder that has caused me to lose most of the strength and sensitivity in my arms, legs, hand and feet.

[/ QUOTE ]

Hello rooster, nice to meet you.

I have a couple of questions for you please:

What is your neuromusclar disease called, and when did you know you had it? (from birth or did you feel something was wrong anmd the doc did tests?)

Cheers,
SDM

[/ QUOTE ]
Thanks for the response. The answer to you question is a long one. I put together a small website that explains what you are asking. It can be found here (http://www.freewebs.com/mylifewithcmt/mystory.htm).

[Rooster71]

Thanks for the response.

[ QUOTE ]
I would learn how to make my movements as economical and efficient as possible. Are you familiar with movement learning techniques like Alexander and Feldenkrais?

[/ QUOTE ]

I have not heard of this. Can you tell me where I can find more info?

[ QUOTE ]
Another related area to this is learning how vitamins and other diet supplements effect degenerative nerve conditions.

I can see how you might get sick of this sort of thing as it does not distract you from your disorder, it takes you further into it, but if it interests you I think it could be very rewarding.

[/ QUOTE ]
I have looked into vitamins, etc. Such as Alpha Lipoic acid and CoQ10. I think the most important thing is to eat right, get adequate rest and activity, etc. My big thing now is trying to cut down the number of meds I take.

[sexdrugsmoney]

</font><blockquote><font class="small">En respuesta a:</font><hr />
</font><blockquote><font class="small">En respuesta a:</font><hr />
</font><blockquote><font class="small">En respuesta a:</font><hr />
Hello all. I am 34 years old (single with no children) and for the last year I have been permanently disabled (on SSDI and long term disability). I have a degenerative neuromuscular disorder that has caused me to lose most of the strength and sensitivity in my arms, legs, hand and feet.

[/ QUOTE ]

Hello rooster, nice to meet you.

I have a couple of questions for you please:

What is your neuromusclar disease called, and when did you know you had it? (from birth or did you feel something was wrong anmd the doc did tests?)

Cheers,
SDM

[/ QUOTE ]
Thanks for the response. The answer to you question is a long one. I put together a small website that explains what you are asking. It can be found here (http://www.freewebs.com/mylifewithcmt/mystory.htm).

[/ QUOTE ]

Cheers Rooster, sorry to hear about this condition you have, I hope everything goes well mate.

-SDM

[raisins]

Hi Rooster71,

Sorry for taking a little while to respond.

Starting with the supplements first. I would look at anything that promotes brain and CNS health. CoQ10 and Alpha Lipoic acid are perfect examples of what I was thinking of. I'll go ahead and mention that Vitamins B and E promote brain health as well. It appears that you're pretty familiar here so I'll leave alone especially as I am very much a layman sniffing about.

Feldenkrais and Alexander are methods of teaching movement. Most of us are pretty desensitized to portions of our body. We tense sets of muscles habitually and holding this tension limits our ability to receive sensory feedback from those areas. Habitually tensed muscles expend a lot of energy with no purpose. Energy is not only wasted in the tensing of the muscles but also in the movement not being as graceful and efficient as it could be otherwise. An example of this: think of someone with poor posture at their desk turning to the side to answer the phone or to speak to someone in the office, the torso would not rotate as freely with all the excess tension in the upper back and shoulders. Alexander and Feldenkrais are both studied by actors to gain better control of their bodies. Feldenkrais also has a history of working with those suffering from CNS disorders and people recovering from strokes. Here (http://www.feldenkrais.com/senseability/detail.lasso?article=142) is a short article relating some gains that someone who shares your disorder was able to make from some Feldenkrais lessons.

A search for Feldenkrais on the web will pull up some articles. The developer's name is Moshe Feldenkrais. Some of your larger bookstores will carry his books in the Alternative Health or Bodywork section. Another book that some bookstores carry is Relaxercise. 10 minutes spent flipping through Relaxercise will give you a better idea of what it is all about than just about anything else.

best wishes,

raisins